It had been a couple of months in the planning, but, yesterday morning, the day finally arrived – Bump’s Brain Pyjama Walk in aid of The National Brain Appeal.
I’d been panicking that everyone who had said they were going to do the walk would do it. I know a couple of people had to pull out, but I still worried about everyone turning up.
We started off with breakfast at my mum’s. Whilst we were eating I started to get a couple of photos through. My friend from work sent me a photo of the girls waiting at the train station in all their gear. I was so pleased/happy at all the effort they had gone to. My sister said “you’re going to cry aren’t you?” I managed to hold off. Right then, though, I knew that everything was going to be ok and go well.
After our breakfast, we made our way into Liverpool. It’s a very surreal experience when you get out of your car and meet a pug, a gangster tiger, eeyore, a cat, a skeleton, a giraffe, a monkey and a man looking like what can only be described as a cross between Bette Lynch and Miss Piggy.
We headed over to St George’s Hall and as we climbed the steps we spotted the bright pyjamas and the hair rollers.
I’ve never felt prouder of my family and friends than I did when I saw them all sitting there looking completely ridiculous but actually not caring. They were all just chatting away as if everything was perfectly normal.
It was just brilliant to see everyone together and all supporting the little man.
We set off on our walk, with a couple of photo/stocking up on water stops. When we got to the Albert Dock, we called in at The Pumphouse for a half way beverage (might have been alcoholic, but it was well deserved). The sun was shining and everyone was sat outside chatting, talking to people they’d not met and it was just a really great feeling watching everyone.
We carried on our walk and eventually ended back at my uncle’s pub – The Rose & Crown on Cheapside, off Dale Street. He’d said he was going to put on some food for us which I was really appreciative of. I wasn’t expecting, however, a full buffet and some bottles of fizz. Everyone loved the food, I even got the comment “now this is what you call a proper buffet!!”
All in all it was a great day. We raised lots of money. Everyone made it so special, even the people that couldn’t be there. I really do have the best family (and I include James’ family in that) and friends. I hope we can all do something together again and I hope you all met some new friends.
With only one more sleep left before our pyjama walk tomorrow for The National Brain Appeal, I am sat in my pyjamas writing this – getting mentally prepared
When I first started organising it, I thought there’d be about 10 people doing it and we’d raise about £4/500. We’ve now got approx 40 people taking part and have nearly got to the £2,000 mark. The amount of support received has been overwhelming.
J, the sis, the ma and I went pyjama shopping today. There were a few fetching onesies bought and I’m excited to see everyone in their get up tomorrow.
Seabass has his outfit ready. He will of course be coming along – he is the star of the show. I hope when he looks at the pictures in years to come that he’s not mortified and doesn’t think his mum is a bit of a pleb.
There’s still time for you to join in tomorrow if you want to, just let me know so I can add you to the list. Never mind about the “embarrassment” of walking around Liverpool in your pyjamas, at least you’ve not had to have brain surgery!!! It’ll be fun and you get food at the end. Plus, more importantly, you will be helping a lot of people.
There’s also still time to donate here and help us get to the £2,000 mark.
There’s also a Liverpool One voucher for the person who goes to town the most on their outfit.
Can’t wait to see you all tomorrow.
Lots of love xx
Now I’ve never done one of these before, as it isn’t what the blog is about. However, I wanted to do a little mini review of the Tea Rooms we went to today as I absolutely loved it.
Annie’s Tea Rooms is on Endbutt Lane in Crosby. I was told about it on a course I was on last week. I’m quite fussy when it comes to tea rooms. In my opinion, tea rooms should have delicious sandwiches, homemade cakes, nice crockery/china and look a little bit vintagey. This ticked all four with the added bonus of genuinely, lovely staff.
We arrived with two prams, which in some places they make it obvious that we are inconveniencing them – we’ve been sent into a separate bar before, and been whispered about in another place. Not here, they opened the doors to help us in and moved some of the furniture around so we could sit down.
The décor is lovely, light and homely. The cakes are on display, making your mouth water, and you’re made to feel extremely welcome.
We all ordered paninis – which were delicious. You get a decent portion of salad and crisps with it and it is not unreasonably priced for what you get either.
We didn’t get the breakfast but the menu looked great. I’m definitely going to go back and sample it. I’m yet to find somewhere that does a really, good full English breakfast.
We were all stuffed after our food but when there is homemade cake in view, there’s always room to squeeze a slice in. I had carrot cake, my sister had bakewell tart and my future m-i-l had raspberry and white chocolate cheesecake. Yummy – that’s all I’ve got to say on it.
We were in there for about 2 hours as it was so nice to sit, chat, feed the babies, eat our food and not be rushed (despite people starting to queue at the door). I could have stayed and ordered my tea later on, but I don’t think they’re open late enough.
So if you ever fancy a trip out, try Annie’s Tea Rooms – you won’t be disappointed. Take a look at their site here.
You may recall in one of my very early posts, I wrote about a website a lady who has an arachnoid cyst had set up. This is my letter to her.
Dear Arachnoid Cyst Lady (don’t know her real name),
I can’t imagine what living with an arachnoid cyst is like. I believe you when you say it is painful and you have had continuous headaches. I wouldn’t insult you by even pretending I could put myself in your shoes. I still, however, do not condone what you have written on your website.
My son has an arachnoid cyst. A large one for such a beautiful little head. We discovered he had it at his 20 week scan. We were asked our views on termination as we didn’t know at that point what quality of life he’d have. I spent hours upon hours searching the internet, looking for information on arachnoid cysts in babies. I couldn’t find a lot. I did, however, find your website. I also found the part were you wrote that if a parent discovers their unborn baby has an arachnoid cyst then it would be cruel of them to carry on with the pregnancy. You actually tell people to get rid of their child as keeping it would be meaner than not keeping it. After reading this, I’m ashamed to say that I considered what you were saying. As I had no other information, I thought what you were writing might be true. I showed it to my partner and we actually considered, based on this, that we maybe should think about it.
A few days later, in the hospital, I said to my partner that I couldn’t end the pregnancy. I didn’t care what the outcome was going to be, but I didn’t want us to choose to end the pregnancy – we would just deal with whatever happened. If he hated us when he was older for allowing him to be born, then so be it. At least we were giving him the chance to have his life.
I’m pleased to say that that was THE best decision we have ever made. Our baby boy is just perfect. He has had treatment for his cyst which has now shrunk significantly. He smiles, he chatters and he is just beautiful. He’s not in pain or, if he is, he doesn’t let it bother him.
We have a beautiful son and my daughter has a beautiful brother.
So I’d just like to say that although I am sorry for what you are going through, please don’t tell people to get rid of their babies. My son is proof that not everyone who has this condition has the appalling life you write about.
If anyone else sees that website and then reads this letter, please take heart from the fact that your baby could be just as happy as ours.
From a very happy mummy.
The mighty Seabass has struck again!! We went for his MRI and neurosurgeon appointment today at Alder Hey. The cyst is now a quarter of the size it was and his brain has expanded and filled in the gap. The neurosurgeon is hoping he won’t suffer with his motor skills and it will only be behavioural/memory problems he may suffer from. I don’t care though. Boys are meant to be a bit cheeky anyway, right?!
It’ll obviously still be an ongoing monitoring process to see how he progresses but considering less than eight months ago we were being asked what are views on abortion were, we have definitely come a long way!! I’m so glad we decided we could never go through with that. It doesn’t even bear thinking about. We are definitely proof that miracles can happen.
The little man spends a lot of his time smiling and chatting. He’s just beautiful.