Little Superstar

I have been extremely bad recently at keeping the blog updated. Work and life seem to have gotten in the way. But, as was pointed out to me a couple of days ago, I should keep updating because knowing how Seabass is progressing could help people in the future.

Seabass is 14 months now. He is amazing. He’s such a beautiful, happy and smiley baby. He is not yet crawling but other than that he pretty much does what he is meant to. 

We had a Neuro appointment yesterday which went well. Everything seems to be on track. He still sees his paediatrician every 6 months, a physiotherapist every couple of months and also a community based service called Portage who come out every week or so to play with him and see how he is developing. He has a lot of support which is great.

He is a huge flirt. He likes to tilt his head and blow kisses at the ladies whilst shouting “iya” repeatedly. 

He loves to eat. Absolutely anything really. In fact, he can be quite a snobby eater – prefers houmous instead of butter on his sandwiches. Likes olives and focaccia as a snack. It’s great, though sometimes annoying when he ear piercingly screams for food.

Tinker Bell still continues to be amazing with her little bro. She’s a definite mother hen with him. I sometimes feel defunct. She also manages to patronise me quite a lot about what I should and shouldn’t be doing. She definitely thinks there should be some sort of role reversal with me and her. Seabass loves her to bits though so that’s great. 

Tinker Bell is going into Year 2 of school tomorrow which is scary. Time is certainly flying.

Hope you are all ok.

Lots of love.

One Year Blog Anniversary

Can you believe it has been a year since I started this. So much has happened.

Hope everyone is having a good start to 2014. This February has definitely been better than last February!!! 

Seabass is doing well. Eating us out of house and home. He’s rather partial to olives and houmous which is good. He wears clothes aged 9-12 months, and looks like he will soon be ready for the next size up. 

He had a physio appointment today which went well. He still can’t turn over yet but he’s getting there and he is starting to be able to sit on his own. We were told it might take him a little longer to do things because of his cyst etc. I think if I held some food in front of him though he’d probably get up and run to it. 

He has also had a hearing assessment which he passed and Portage have been out to see him. They will assess his overall development. When he gets to 1 they will come weekly, or as often as deemed necessary, and play with him to see how he is developing. Depending on how he develops, they will also help with plans for nursery and school etc.

So everything is going well with the little man.

J and I got married last week. It was very lovely. It was just a small celebration which is what we wanted. I got to eat pie and cake though so that’s good. We had a lovely day and then a nice (but not relaxing in the slightest) honeymoon in Paris. I think we are more tired now than before we went!!

I start back at work on Monday. Not looking forward to it. I’m looking forward to seeing people but not to leaving Seabass. I’m also not looking forward to no longer being able to take/pick Tinkerbell up from school. It’ll be rubbish seeing less of them :-( 

I’m not as worried about leaving Seabass as I was with leaving Tinkerbell when I went back to work after having her. My sister is going to be looking after the little dude, so I feel much better about leaving him with her than I would if I had to leave him at nursery. I’m sure he will have lots of fun with her and Rose.

Well, this was just a quick update as to what’s been happening. Hope you’re all ok. Lots of love xxx

Hospital Updates

So we have had two appointments for Seabass over the last week and both have gone well. 

The paediatrician couldn’t believe how well he was doing, even asking if he had the correct patient’s notes. We don’t need to see the paediatrician for another couple of months. He will keep an eye on Seabass’s development as, although he is doing really well, there are no guarantees as to what his future development will be like. 

We are now on our way back from the neurosurgeon appointment. Again, they were pleased with how he is doing. His head measurements are now just below the top centile whereas before they were above. 

We’re very pleased with how the little man is doing. Little fighting superstar. 

Just goes to show, you should think very long and hard when problems are detected during pregnancy. Don’t necessarily believe the worst. Some babies defy the odds :-) 

New Year, New Me :-)

It’s been a while since I wrote anything, so thought I should check in. 

Seabass is continuing to do well and is still the most beautiful, happy little boy you ever did see. He brings the three of us so much happiness. I know it sounds stupid because he’s only 6 months, but you can tell he loves his family. He gets so excited and smiley when he sees us all. 

He has his two front bottom teeth now and says “dada” – I don’t know if he knows what he’s saying, but I like to pretend he does. 

We had a lovely first Christmas. Tinkerbell spent Christmas Eve with us before going to her dad’s. It was nice having Christmas morning together but it would have been nicer to have the whole day together. 

She still amazes me with how loving she is with Seabass. The novelty of a new baby hasn’t worn off in the slightest. He’s the first person she wants to see when she gets up and when she finishes school. She wants him to be everywhere with her. When we have tea she pulls his chair right next to hers, when she has a bath we have to take him up in his chair to sit with her, when she plays in her room he has to sit in there with her. She calls him “my gorgeous baby boy”. Sometimes it’s like she is the mum. When she comes into our room in the morning, she likes to read him Each Peach Pear Plum. I think we’re all a bit fed up of listening to it, but I still don’t want her to stop. 

I love my little family. 

2013 was a bit rubbish (apart from Seabass arriving safely and Mini Rose arriving too). We’ve had a tough time for various reasons, but I think (without sounding too big headed) we’ve got through it fairly well. We are hoping for a more positive and happy 2014, so if someone up there is listening then it’d be nice if there could be a break from the rubbish stuff for a while. 

Much love. 

@BrainAppeal Pyjama Walk

It had been a couple of months in the planning, but, yesterday morning, the day finally arrived – Bump’s Brain Pyjama Walk in aid of The National Brain Appeal.

I’d been panicking that everyone who had said they were going to do the walk would do it. I know a couple of people had to pull out, but I still worried about everyone turning up.

We started off with breakfast at my mum’s. Whilst we were eating I started to get a couple of photos through. My friend from work sent me a photo of the girls waiting at the train station in all their gear. I was so pleased/happy at all the effort they had gone to. My sister said “you’re going to cry aren’t you?” I managed to hold off. Right then, though, I knew that everything was going to be ok and go well.

After our breakfast, we made our way into Liverpool. It’s a very surreal experience when you get out of your car and meet a pug, a gangster tiger, eeyore, a cat, a skeleton, a giraffe, a monkey and a man looking like what can only be described as a cross between Bette Lynch and Miss Piggy.

We headed over to St George’s Hall and as we climbed the steps we spotted the bright pyjamas and the hair rollers.


I’ve never felt prouder of my family and friends than I did when I saw them all sitting there looking completely ridiculous but actually not caring. They were all just chatting away as if everything was perfectly normal.

It was just brilliant to see everyone together and all supporting the little man.



We set off on our walk, with a couple of photo/stocking up on water stops. When we got to the Albert Dock, we called in at The Pumphouse for a half way beverage (might have been alcoholic, but it was well deserved). The sun was shining and everyone was sat outside chatting, talking to people they’d not met and it was just a really great feeling watching everyone.









We carried on our walk and eventually ended back at my uncle’s pub – The Rose & Crown on Cheapside, off Dale Street. He’d said he was going to put on some food for us which I was really appreciative of. I wasn’t expecting, however, a full buffet and some bottles of fizz. Everyone loved the food, I even got the comment “now this is what you call a proper buffet!!”

All in all it was a great day. We raised lots of money. Everyone made it so special, even the people that couldn’t be there. I really do have the best family (and I include James’ family in that) and friends. I hope we can all do something together again and I hope you all met some new friends.